Hardships and joys of parenting children with special needs

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Hardships and joys of parenting children with special needs

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The toughest challenges are the medical intensity of Charles Syndrome and related syndromes and disorders. It is really quite harrowing at times but you will find so much solace from the nurses and the doctors and also by educating yourself and making yourself the best advocate you can possibly be for your child. The greatest joys will come from your child reaching the unimaginable heights. For example, I was told my child would never get out of hospital, would never walk, would never hear, may not see. And you know you really believe in your child and give them the best opportunites, get them the best care, the best therapy that is possible. And you really can move oceans by being a great advocate and it really comes from seeing your child do things which were previously unimaginable.

See Catherine Lacey Dodd's video on Hardships and joys of parenting children with special needs...

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Catherine Lacey Dodd

Mom & Photographer

British born and living in Los Angeles, Catherine Lacey Dodd is the mother to Reuben Jack, age five, and Callum Andreas, age four. She’s a work at home mama, owner/photographer at Catherine Lacey Photography and creative writer. Reuben, whose name means, "behold a beloved son", has CHARGE syndrome. He has undergone 18 surgeries including two open heart and countless hospitalizations. Callum is his much longed for brother and his best friend. She created the blog, ReubenJackDodd, which tells her family’s journey through thought-provoking words juxtaposed with eye catching imagery and the sweet faces of her two little loves. 

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Transcription: 
The toughest challenges are the medical intensity of Charles Syndrome and related syndromes and disorders. It is really quite harrowing at times but you will find so much solace from the nurses and the doctors and also by educating yourself and making yourself the best advocate you can possibly be for your child. The greatest joys will come from your child reaching the unimaginable heights. For example, I was told my child would never get out of hospital, would never walk, would never hear, may not see. And you know you really believe in your child and give them the best opportunites, get them the best care, the best therapy that is possible. And you really can move oceans by being a great advocate and it really comes from seeing your child do things which were previously unimaginable.