Life expectancy for a child with CHARGE syndrome

See what the CHARGE syndrome life expectancy is for children and what you need to know about it. Get advice on how to parent a child and how to deal with CHARGE syndrome life expectancy issues.
CHARGE Syndrome Life Expectancy For A Child
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Life expectancy for a child with CHARGE syndrome

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This is actually one of the most difficult issues to address because every child with CHARGE syndrome is just as unique as every other child. The life expectancy is obviously challenged due to the number of surgeries that the child will go through initially in his early years. It is a very, very intense period this first few months of life. But so many of the children make it through. One of the big characteristics of CHARGE syndrome is the unnerving determination of children. It is very characteristic of CHARGE syndrome. I think that also extends to how they go through the most impossible series of surgeries and triumph and get to go home with their parents and live a long and fulfilling life.

See what the CHARGE syndrome life expectancy is for children and what you need to know about it. Get advice on how to parent a child and how to deal with CHARGE syndrome life expectancy issues.

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Catherine Lacey Dodd

Mom & Photographer

British born and living in Los Angeles, Catherine Lacey Dodd is the mother to Reuben Jack, age five, and Callum Andreas, age four. She’s a work at home mama, owner/photographer at Catherine Lacey Photography and creative writer. Reuben, whose name means, "behold a beloved son", has CHARGE syndrome. He has undergone 18 surgeries including two open heart and countless hospitalizations. Callum is his much longed for brother and his best friend. She created the blog, ReubenJackDodd, which tells her family’s journey through thought-provoking words juxtaposed with eye catching imagery and the sweet faces of her two little loves. 

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Transcription: 
This is actually one of the most difficult issues to address because every child with CHARGE syndrome is just as unique as every other child. The life expectancy is obviously challenged due to the number of surgeries that the child will go through initially in his early years. It is a very, very intense period this first few months of life. But so many of the children make it through. One of the big characteristics of CHARGE syndrome is the unnerving determination of children. It is very characteristic of CHARGE syndrome. I think that also extends to how they go through the most impossible series of surgeries and triumph and get to go home with their parents and live a long and fulfilling life.